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Living with renal failure is like grieving

SARAH Keogh knows better than most the huge impact an organ donation can have on a life.

The young West Clare woman has been through a rollercoaster of emotions and experience since she was diagnosed with renal failure at just 12 years old. Since then she has received a kidney transplant, went into rejection after a few years and is back on dialysis and the transplant list again.

“What I can describe it as, you know the way you grieve for someone. When I heard the news that it had gone into rejection it was like you had nearly lost someone,” said Sarah.

For the years the kidney worked however, the now 22-year-old knew what is was like to be free of dialysis, be able to eat and drink with freedom, have energy to keep up with her friends and have her medication cut from 30 tablets a day to just five.

For the first year after her diagnosis medical professions tried to control her condition with a strict diet and medication, however when she was just 13 years old it became apparent she would have to begin home dialysis and begin the wait for a kidney.

“When I was younger I don’t think I grasped the whole concept of it really I just took it as it was but I understand it more now that I am older – the seriousness of it,” she said.

Then when she was 15 years old she received her first kidney transplant, which changed her life. After four years however, for no apparent reason, the kidney was rejected.

“When I was first in kidney failure I still had a urine output, whereas a lot of people in kidney failure don’t have that. I had the function where my kidneys would get rid of the fluid I was taking in, but it wasn’t clearing my blood. I had a looser diet and I wasn’t on fluid restitution, where as this time around I have no urine output so I am on a fluid restriction of 800 mls to a litre a day, which I find really, really hard. I am on a lot stricter diet because I don’t have any kidney function now,” she explained.

Sarah has also opted for home dialysis, which means she has access to the treatment 24 hours a day.

The Limerick Institute of Technology student uses portable bags for her dialysis. She must drain and replace fluid four times a day, a process that takes between half and hour and 40 minutes.

“If I go away for a day, say I go to Dublin on the train, then I do have to bring those bags with me, so usually I am carrying a bag with four bags in it depending on how much I have to do for the day I am gone,” she said.

Despite some of the setbacks and challenges life has put in her way, the Tullycrine student has a positive outlook for the future.

As she approaches her 23rd birthday, she is determined to live a full independent life irrespective of the constraints imposed on her by dialy- sis, food and liquid restrictions and low energy.

“With the home [dialysis] I have so much more freedom. I am in college, I can go on holidays, I hang out with my friends. I can bring it with me. Whereas Heamo you are that bit more restricted. Three days out of your week is gone really because it drains you completely,” she said. More than 40 people in Clare are on Heamo dialysis. “I sleep a lot. I go for a nap during the day for maybe two or three hours. The diet and the fluid I find very hard as well, especially when you are with friends and they might buy a bottle of water and they are able to gulp it down, where as I have to measure everything I am taking in or at least try. And even food wise as well. I am not really allowed processed food. It is very high in salt and stuff,” explained Sarah.

The second year student has her bag packed and is ready for another call from the kidney transplant team, when another kidney match is found.

She said that people who sign donor cards give people like her a great chance at life, for which she is very grateful.

Sarah looks forward again to a day when her dialysis is gone, her medication is drastically reduced and she has the freedom of a regular diet.

“I have told my family if I do get a transplant I want them to come in with a cup the size of my head, so I can have a massive cup of tea,” she said with a good humoured laugh.

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Raheen hosp at HIQA standard in 18 months

RAHEEN Hospital Support Group said it was satisfied that the 28 beds in the local community hospital would be upgraded to HIQA standards within 18 months.

Following years of requests and a Dáil motion on the issue, senior management from the HSE finally sat down with the group yesterday (Monday) to outline its plans to have the hospital HIQA compliant before the end of next year.

The first phase of the plan will see the upgrade of the current beds, which will entail adding an extension and converting the rooms from fivebed wards to single ensuite rooms.

William McLysaght from the Raheen Hospital Support Group said the meeting was positive and “the HSE were very positive everything was going to be done”.

“Once the architect has drawn up the plans local fundraising will take place for a community donation to the project,” he said.

The money raised by the community will fund an identifiable tangible part of the work.

“We were disappointed it [the meeting] had taken so long but hope now it will be a positive outlook for the hospital,” he said. Work is almost completed in upgrading projects to bring Regina House in Kilrush and Ennistymon Community Hospital to HIQA standards.

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Sinn Fein and Labour add candidates to election race

SINN Fein and the Labour Party added new candidates this week to contest the Ennis local elections, and both parties are understood to be in talks with potential candidates for the West Clare Municipal Area.

With just over seven weeks until polling day Sinn Fein selected Corrovorian man Cathal O’Reilly to represent the party in the Clare County Council Elections in May.

A butcher by trade his family have been traders in Ennis for generations. “I suppose my grandparents would be the best known of my family. My grandmother was May Lyons whose family owned Lyons’ Bar at the top of Parnell Street and my grandfather was John O’Reilly who owned O’Reilly’s butchers shop at the bottom of Parnell Street,” he said.

“This is the first time I have run for election and I’m really looking for- ward to it. There’s a real buzz around the party and I’ve been delighted with the pledges of support I’ve received already. I’m also grateful to my comrades for selecting me.

“I care strongly about my home place. It’s terrible to see the state of not only Clare but the whole country. I want to be part of the fight back and recovery. I want a better future for my children. I believe Sinn Féin have the best policies to achieve that.”

Mike McKee, Shannon, is the only other Sinn Fein candidate declared to date, but it is understood that a West Clare candidate is to be announced in the coming week.

Meanwhile the Labour Party in Clare has added Dermot Hayes to the party’s list of candidates for the local elections in Clare.

The trade unionist and advocate for people with disabilities will join Seamus Ryan on the Ennis ticket. Mr Ryan was selected ahead of Mr Hayes at the Labour Party conven- tion last November.

Mr Hayes said he is being added to the ticket, as Labour is “getting a very positive response on the canvas and now believe that there is a good opportunity to get two candidates elected.

Mr Hayes comes from Kells, Corofin, from a family of 13 children. He attended Ennis Community College and, as a mature student, he studied Community Development in Galway and Maynooth Universities. He has lived in Ennis since 1974 with his wife Marian and two teenage daughters.

The Labour Party in Clare is also running a candidate in the new look Shannon Municipal Area in the form of County Councillor Pascal Fitzgerald.

There are approximately 25 candidates running in the Ennis municipal Area for eight seats, to date, and an estimated 11 in the Shannon area for six seats.

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Doonbeg Drama goes for All-Ireland glory in Mayo

DOONBEG is hoping for All-Ireland glory this weekend as its drama group is in the All Ireland Drama Final in Claremorris, Co Mayo.

Having reached the top nine of the 34 drama groups doing the “competition circuit” nationally, the group are now in a position to bring national gold to the long village.

The Doonbeg Drama Group is no stranger to the pressures of national competition having come runners up by just one point to the All-Ireland winners in 2012.

Producer and co-founder of the group 34 years ago, Mary Egan said the 22-strong crew and actors were looking forward to taking to the stage in Mayo on Sunday night with The Cavalcaders written by Billy Roche.

The group was reformed in 1980 by Ms Egan and Murt McInerney who also served as producer for the group for numerous years. In 1990 Doonbeg Drama Group began competing in competitions around Ireland and has been one of the stronger groups on the circuit since.

Those wishing to see the play one last time before the set and cast relocate to Claremorris for the All-Ireland Final, can do so in Doonbeg Hall this Thursday, April 3, at 8.30pm.

The winner of the All Ireland will be announced on Saturday, April 12.

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Car park upgrade for Cliffs of Moher Visitor Centre

MORE than half a million euro has been made available for the upgrade of parking facilities at the Cliffs of Moher Visitors Experience.

The cliffs, which attracted just under one million visitors to Clare last year, has been operating using a gravel car park since the opening of the € 31 million re-development of the facility in 2007.

Management at the Cliffs of Moher Visitor Experience announced the € 550,000 investment last week which includes an upgrade of the existing public car park, provide additional coach parking as well as an upgrade the centre’s exhibition.

Contracts have already been awarded for the coach parking and exhibition upgrades with works due to commence shortly, while a plan ning application has been submitted in respect of the proposed car park improvements.

“The upgrades to the coach park and car park will provide an improved experience for our group and car-based customers with increased capacity and a better layout including e-car charging points, additional disabled parking and improved pedestrian flow,” said Katherine Webster, Director of the Cliffs of Moher Visitors experience.

“The new exhibition content will bring fresh exciting new experiences and greater visitor interactivity to the cliffs exhibition. The upgrade is being provided by Dublin-based Rockbrook Engineering and we’re delighted with how their proposals will bring some of the outdoor ex perience of the cliffs inside into the dome area.”

Advanced booking at the Cliffs of Moher for 2014 indicate that the facility is likely to top one million visitors this year for the first time ever.

This follows a 10 per cent increase in 2013, when 960,134 people visited the world famous tourist attraction. This compared to 873,988 visitors in 2012.

The Cliffs of Moher Visitor Experience has also been identified as one of the three Signature Discovery Points in Clare on the Wild Atlantic Way, alongside the Bridges of Ross and Loop Head Lighthouse.

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Planning sought for commercial training centre in Shannon

A NEW commercial training centre could be on the way for Shannon as plans for the facility have been with an Bord Pleanála.

The Shannon Airport Authority lodged the proposal with the planning authority last week, which would see an existing boiler house at Shannon converted into the a new commercial training centre.

Little information about the nature of the proposed development is available except that the application was made under the Strategic Infrastructure Development (SID) system at an Bord Pleanála, which is normally reserved for very large projects which would have a regional impact. How- ever, under current planning legislation, every development at the airport is required to go through the SID process – even if the development is small and will be referred to planner at Clare County Council.

Clare County Council is currently working to remove the planning law, which requires all building projects at Shannon Airport to be first lodged with an Bord Pleanála but it is currently still required in order to gain planning.

This news comes just over a week after Shannon Development an nounced plans to clear a massive 10,000 square metre site in the Shannon Free Zone for an unknown future development.

The agency applied to Clare County Council last month for permission to clear the site, which is located at Block C in the Shannon Free Zone.

In the planning file lodged with the local authority, Shannon Development has requested permission to clear a number of existing light industrial and office buildings in Block C, with a total cleared space of more than 8,050 square metres.

There is at present no indication that a particular development has been earmarked for the site, but a spokesperson from Shannon Development said that the area has been earmarked for “redevelopment”.

“The work we are carrying out at Shannon Free Zone is part of our strategy to position this area of the Zone for redevelopment with a view to developing this site in the future,” said the spokesperson.

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Burglaries stretching garda resources

GARDA resources are being stretched to the limit trying to deal with the rise in burglaries in Ennis.

Yesterday’s meeting of the Ennis Joint Policing Committee heard that 59 burglaries were recorded in Ennis for the first three months of the year. That is an increase of three burglaries on the same period in 2013.

Supt Derek Smart of Ennis Garda Station told the meeting burglaries are the area of most concern to gardaí.

He said a large number of Garda resources, including the establishment of crime checkpoints near Ennis, are being allocated to tackle the crime.

“Burglaries are taking up a lot of time and effort. People’s homes should be their castle. So a lot of my resources are stretched trying to tackle that and detect that crime,” he said.

“We’ve taken checkpoints and brought them back closer to Ennis town where the majority of our burglaries are being committed. There are a lot more crime checkpoints which are directed at trying to find the culprits,” added Supt Smart

In his report to the committee and members of the public, Supt Smart detailed crime figures for Ennis for the first three months of 2014.

He said there have been five robberies of persons in 2014 compared to one in the same period as last year.

A number of people are currently before the courts in relation to the allegations.

There were three incidents of criminal damage by fire in the first three months of 2014; 28 reported thefts and 26 thefts from mechanically propelled vehicles.

Supt Smart told the meeting there is an 81 per cent detection rate in thefts from persons.

Garda have investigated 13 reports of missing persons, conducted 50 drugs searches and 46 searches under warrant.

There have been 11 drink-driving detections compared to 12 for the same period in 2013.

Three people were detected on suspicion of drug driving in the first three months of the year. The meeting was attended by a large number of business people who expressed concern about the level of anti-social behaviour on the streets of Ennis.

A number of them highlighted incidents that occurred on St Patrick’s Day.

Supt Smart urged people in the town to contact them anytime an incident occurs.

In response to questions on the use of Anti Social Behaviour Orders (ASBO), Supt Smart said very few of the orders have been issued in Clare.

On the prospect of increased Garda resources for Ennis, Supt Smart said the force in Clare has been hit hard by retirements in recent years. Committee member Michael Guilfoyle (Ind), quoted a recent comment by Chief Supt John Kerin who said 55 gardaí had retired from the force in Clare over the last few years.

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NRA still monitoring stretch of M18

THE National Roads Authority (NRA) will continue to monitor a stretch of the M-18 which they closed to all drivers for a week last month, in an unprecedented move.

The northbound stretch of the motorway between Barefield and Crusheen was closed to allow repairs to take place between March 10 and March 14.

The main focus of the repair work was focussed on a patch of the mo- torway an overpass between Junction 14 and Junction 15.

A spokesperson from the NRA said yesterday that the repair effort had required “additional resources” but the roads authority is happy with the work which was carried out.

“There was cleaning out of culverts and maintenance of road drainage system and yes there was some areas worse than others, so it took additional resources but currently the road appears to draining well and we are monitoring it,” said a spokesperson from the NRA.

The work, which was described by the NRA as “drainage assessment and improvement works”, follows months of pressure from Clare County Council, Clare gardaí and the local media, following a spate of accidents on the road over the Christmas period.

The NRA had previously rejected calls for a safety audit to be conducted and speed restriction to be introduced but had a change of heart in early March, confirming that a safety “engineering assessment” would take place in the com- ing months.

The NRA assumed responsibility for maintenance on the M18 between June and September of 2013.

A number of questions have been raised about the safety of sections of the M-18 between Ennis and Gort since it was opened in November of 2010.

A number of local people stopped using the motorway in the wake of a spate of accidents over the Christmas period, instead using the old N18 route between Ennis and Gort.

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Children under 12 ‘running riot’

RESIDENTS of an Ennis housing estate plagued by almost two years of anti-social behaviour, threats and verbal abuse expressed their frustration at yesterday’s meeting of the Ennis Joint Policing Committee (JPC).

Four residents attended the meeting and outlined the issues affecting the beleaguered estate. They include the running of horses on one of the town’s busiest roads, anti-social behaviour and harassment.

One woman told of how two families have left the estate while many others have had to install security features such as chains, security cameras and alarms on their properties. “We feel we have a right to feel safe in our home. We shouldn’t be intimidated by either adults or children. Our children should be able to feel safe to go out and play,” she said. “It’s a terrible way to live. We’re here from an estate with a hundred houses, asking for help.”

The meeting heard the problems started after a man with a large family moved into the area two years ago.

One woman told of how children under the age of 12 are “running riot and destroying property”.

She said, “The horses are being chased up the road. They are just frightening the horses, pushing them into the estate. The horses are running wild. I feel sorry for the horses. The horses are bolting out onto the road and car could be coming down the road. It’s just frightening.”

Supt Derek Smart of Ennis Garda Station said he was aware of the problems in the area. Gardaí have conducted regular patrols of the estate. Supt Smart said the issue regarding the children has been raised with the Health Services Executive (HSE).

He said, “It is something that is very high on our agenda. In Ennis town in all the estates, we are now making an attempt to assign particular guards to estates.”

Concern was also expressed for the welfare of the children.

One resident said, “I’ve made calls to the HSE regarding young children under the age of 10, there all day and all night on their own. They’re rearing themselves. That’s their way, that’s fine but it’s not right to have an eight or nine year old looking after an infant. Who is feeding them? Who is cleaning the child? It’s just sad, very, very sad. The HSE has far as I’m concerned haven’t stepped in as they should.”

JPC Chairman, Cllr Paul O’Shea, said the HSE should be invited to attend a meeting to discuss the issue.

Cllr Mary Howard (FG) said she could not understand how the children have not been taken into care.

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Cannabis growing a ‘cottage industry’

A COTTAGE industry in the cultivation of cannabis seems to be forming in West Clare according to a District Court Judge.

Judge Patrick Durcan made the comments during the case of a 44year-old man who appeared before him charged with growing six cannabis plants in his Tullycrine home.

Stephen McMinn of Tullycrine, Kilrush pleaded guilty to the cul- tivation of cannabis plants without a licence contrary to Section 17 of Misuse of Drug Act 1977 and the unlawful possession of a controlled drug contrary to Section 3 and Section 27 (as amended by section 6) of the Misuse of Drugs Act, 1984.

The court heard that on May 23 gardaí searched the defendant’s home in the presence of his wife and discovered six potted plants.

Defence solicitor Fiona Hehir told the court that he was growing the plants for his own recreational use.

“He is on social welfare and doesn’t have the money to go out at night and grows it as a pastime,” she said.

She added that he no longer smokes the drug and was “not a man typically involved” in this crime.

“It was more of an experiment,” she said.

Judge Durcan questioned if this did not make the issue more serious.

“You seem to have a bit of a cottage industry here in Clare,” he said to Gardaí.

“There is a bit of it,” replied pros- ecuting Garda Supt Seamus Nolan.

“More than a bit,” replied the judge.

The superintendent pointed out that there were a number of similar cases before the court.

“You don’t have a poitín problem down here?” queried Judge Durcan.

“More sale and supply,” replied the Garda Superintendent.

He added that it was “not something we take lightly.”

The judge ordered a probation report for Mr McMinn for May 20.