This article is from page 8 of the 2011-10-04 edition of The Clare People. OCR mistakes are to be expected so download the original SWF or the rendered page 8 JPG
A GROUP of dedicated Clare parents have achieved the impossible by raising an incredible € 4.2 million in just three years to build a new adult Cystic Fibrosis unit for their children. The sod will be turned later this month on the new facility which will become the first and only facility for people with CF over the age of 16 in the western region.
The facility has been made possible by the TLC4CF group, which is a group of parents from Clare, Tipperary and Limerick, who have worked tirelessly to fill this gap in the services provided by the HSE and provide priceless treatment for their children.
The facility will be built entirely with money raised by TLC4CF and while the HSE has committed to staffing the facility – the parents group now face the challenge of rais- ing the final € 1 million needed to equip the facility.
Over the last three years the group have already raised enough money to employ the region’s first adult consultant for people with CF and then set about tackling the greatest gap in the system – the lack of any real facilities for people with CF once they turn 16.
“TLC is a combined front from parents in the three counties because the services were so bad for adults with CF in this entire region and you are considered an adult at 16 years of age. So we wanted to fight for better services and better conditions for our children,” said Linda Drennan, who has two children living with CF.
“This new facilities are vital for our children. TLC has raised € 1.2 million in the three counties and we have received € 3 million from the JP McManus Pro Am – so the money for the build is there, the fundraising now is about raising the money to equip the building.”
Facilities for adults with CF are currently very poor throughout the country. The achievements made by the TLC4CF group have inspired other groups in other parts of the country to begin projects of their own.
“A massive effort has been put in place by people in Tipperary, Limerick and Clare. We have reached the stage now where we just need to raise € 1 million to finish the project outright. The building will start sometime in October and will take around 18 months – we just need to make sure that the money is there to equip the building once it is finished,” said Marcella Clancy of the TLC4CF. For the full stor y a bout the rema r ka ble a chievements of TLC4CF tur n to page 44 a nd 45.